An article was published by the Washington Post detailing how several women were cheated by a so called clinical trial clinic who claimed to restore eyesight, using stem cell treatment for Age Related Macular Degeneration (AMD).
As a result of the procedure the patients lost their eyesight forever. The article was rather a startling wake up call. It details how “unregulated clinics” are coming up all over the world.
For those of you who don’t know, let me tell you that there is a government website that lists clinical trials, you could visit. What’s surprising is that this particular clinic got their stem cell ‘treatment’ listed on the website. Though that appears like enough information, in this case there was a warning sign that this was not a clinical trial that was on the up and up. It rather asked the volunteers to pay. If you have never participated in a clinical research study, you must be aware that this is a red flag.
Volunteers are just volunteers; rather they are often paid for their time, but never charged for. To mention, it is not a common knowledge that clinical trials should not have the volunteers cause a cost.
So what are the warning signs you should look for when thinking to participate or volunteer for a clinical trial?
For starters, it’s best to do your own research. Visit our webpage or social media pages. One benefit is that currently we live in a digital age, and if you don’t have any sort of social media presence that might make you question a research company performing a research study.
Next step would be your visit to the unit and your interactions with the site staff. All of the site staff is well trained and dedicated to research. That’s not to say the people at the fake clinic were not experts, but while signing up for any research there is lots of information for the volunteers to read and sign.
There are several consent forms to make sure you are making an informed decision about your participation, and outline any potential risks.
The patients who were misled to believe that the stem cell trial was real, were settled out of court. However, if you take note of some of the potential red flags, bad things never happens to you or someone you know.
An authentic clinical trial centre is dedicated to provide the best care to the volunteers. They build a good relationship with many of the volunteers. If you ever have questions in regards to a clinical study you are being a part, you could reach out to them online or offline. They always look forward for helping out you with queries.
Here we share the link to the original Washington Post article: Three Women Blinded By Unapproved Stem Cell Treatment
We conclude now.
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